|
|
|
Current guestbook entries
| Your Name | Corey Zetterlund |
| Where are you from | New York |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I am a 15 year old boy, and I have Pectus Excavatum. It was a condition that I was born with. I have recently consulted a doctor and look forward to undergoing to Nuss Procedure this Summer. Some side comments that I will add are that I have chosen to keep my condition secret, and not tell anyone. This is becoming increasingly harder the older I get. Due to my condition, I have extremly low self esteem, no self confidence and I am absolutly ashamed of the way my chest is shaped. All my life I have had to come up with excuses and exclude myself from activiteis, and it hurts to do this. |
| Does your pectus deformity affect you psychologically? | Yes. I am extremly ashamed of the shape of my chest. I dont understand why I just couldent be born normal. Due to my condition I have extremly low self esteem and no self confidence. |
| Does your pectus deformity affect you physically? | Currently it's undetermined if my trouble breathing is from my Asthma or from the stress this disorder puts on my heart and lungs. Really I dont even know if I have asthma or if the breathing troubles I have are just from this disorder. |
| What do you think of this website? | I appreciate the website very much. The people who took the time and effort to put this information out there I once again thank you for doing this it has been helpful. I live an hour and a half drive from the Hospital where I will be having my surgery done at so I cant always ask the questions I need to ask. That is why I came looking on the internet and found it. Up until I visited my doctor's office I did not even know the name of my disorder. |
| Your Name | Paul Wood |
| Where are you from | Mobile, AL |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | I had a pectus excavatum procedure done on me down here in mob city and I am a lot better. I just found this site because I am doing a research paper on it now. Dr. William Higgs did my procedure and even though I have a scar down the front of my chest spanning 11 inches it is barely even noticeable. |
| Does your pectus deformity affect you psychologically? | It used to. Sometimes people are like man thats cool and then sometimes they are like eww gross. But I'm 20 years old now and it doesn't effect me anymore I don't even think about it. |
| Does your pectus deformity affect you physically? | Before I had surgery it did. I decided to have it done because I was having a really hard time keeping up with my teamates in conditioning in Basketball and my playing wasn't as effective. This is the ultimate reason I had the procedure done. |
| What do you think of this website? | I liked it. It was very informative. |
| Your Name | PS |
| Where are you from | INDIA |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I AM 22.i have mild PEon right side . |
| Does your pectus deformity affect you psychologically? | yes it does a lot. i feel embarassed and i am very introverted. |
| Does your pectus deformity affect you physically? | i have very poor stamina and i am very thin.but there are no other cardiovascular or respiratory problems. |
| What do you think of this website? | very informative and complete site on PE. |
| Your Name | Jan Bebbington |
| Where are you from | UK |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I am 45 years old and have only just realised I have pe by reading this website. I am amazed! I inherited the condition from my father and no-one has ever told me what it is. I would be interested in finding out if my case is mild or moderate as I have had nothing to compare to. Having looked at the photos on the website I am sure it is not severe. |
| Does your pectus deformity affect you psychologically? | Yes, although I am much more confident now than I have been. I find it difficult choosing clothes, especially swimsuits and try to disguise the condition as much as possible. Like many people I was teased at school before I realised anything was different myself and developed an inferiority complex about my body at a young age. |
| Does your pectus deformity affect you physically? | I haven't noticed anything until recently. I have increased my physical activity in recent months and have started to notice a 'mild tight heart pain' on occasions. |
| What do you think of this website? | A complete revelation and extremely informative. It has been comforting to read so many stories similar to my own. |
| Your Name | Sam |
| Where are you from | london |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | thanks everyone for your comments and making me feel not alone anymore. |
| Does your pectus deformity affect you psychologically? | im 17 and find it difficult to go swimming or bare my chest in front of anyone, even family. im alot more concious of myself than i used to be and tend to be quite shy and quiet. |
| Does your pectus deformity affect you physically? | not really. ive always been very active and quite fit. ive ran in cross country for my school so i wouldnt say it affects my stamina. i would say i was 4 on a scale of 1 to 10. |
| What do you think of this website? | great, particulary hearing other peoples experiences. its given me more confidence to accept the condition |
| Your Name | graham dawson |
| Where are you from | hertfordshire |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | |
| Does your pectus deformity affect you psychologically? | I think it has affected me psychologically in the past but at 57 I am used to it. Traits such as low self-esteem, lack of self-confidence, school phobia and remaining in the parental home until my mid-30s, which I certainly have or had, seem to be statistically linked to pectus deformity. |
| Does your pectus deformity affect you physically? | I suppose it must have done. I have always walked, with or without a dog, for a couple of miles a day, on average, strenuously, as a substitute for more 'violent' forms of exercise, which I could not sustain. I leant to swim 3 years ago and now swim 5 times a week. When I was at school, I did not take part in any organised PE or sports. |
| What do you think of this website? | I think that it is very informative and it makes me feel les of a freak than some GPs have tended to do in the past, expressing surprise at the chest that confronts their stethoscopes. And I seem to share most of the personality characteristics associated with pectus deformities. So there is a reassuring feling that I am not alone. One point: two GPs have told me recently that my pectus excavatum is the effect of undiagnosed asthma as a child (I was diagnosed asthmatic about 10 years ago). But it seems to congenital. Is this a matter of dispute and ongoing research? |
|