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Current guestbook entries
| Your Name | Lauren Gray |
| Where are you from | Dana Point, CA USA |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I am 16 and when I was 14 I had the Nuss Procedure done to correct my PE. I was diagnosed with a sunken sternum when I was 3 but there wasn't really any information about procedures and nothing was known about PE. I am getting ready to have my Nuss bar removed in June 2004 and things are working out really well. |
| Does your pectus deformity affect you psychologically? | I was greatly affected by my PE. As a teenage girl in California and living on the beach, I was always nervous about wearing bathing suits or telling people about my PE because I was afraid that people would treat me differenly. I highly suggest to any parent whose children have PE or you have PE yourself to think about having any corrective procedure. |
| Does your pectus deformity affect you physically? | I had a few problems physically. I had asthma that was from my PE, my lungs were smashed to one side and didn't receive as much oxygen as they should have and my heart was shaped like a figure 8 and only have of my heart had been working. Without the Nuss procedure, I would have had major heart problems as I got older. |
| What do you think of this website? | |
| Your Name | tara |
| Where are you from | australia |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | |
| Does your pectus deformity affect you psychologically? | Yes I am a very shy person and willnot let anyone get close to me so they will not discover my deformity,
thank you for your web site it has been very helpful do know if anyone in Melbourne Australia does this operation
thanks again
Tara |
| Does your pectus deformity affect you physically? | Yes |
| What do you think of this website? | Your web site is fantasitc and very helpful im glad you took the time to put it together |
| Your Name | micheal |
| Where are you from | seattle WA |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | im 15 years old and i have PE. It always has bothered me but more so now then ever. Because of this defect i have been through some of the hardest years of my lifge and due to my disability i have a very low self image. Im looking to get an operation done so that i can feel like i can be myself when it comes time for me to take my shirt off. |
| Does your pectus deformity affect you psychologically? | yes i have been through several counslers and i have been diagnosed with an eating disorder because i have the beleif (while i know its not true) i have the feeling that if i loose weight i will be cured of the constant teasing from my peirs. |
| Does your pectus deformity affect you physically? | no not at all. i run cross country and long distance track and physicly its not any problem at all. i am one of the best runers on my team and i have found a sport that i really love. but when my teammates yell out shirts off or guess what its shirtless o clock i am always the one guy with my shirt on because im scared of being teased. |
| What do you think of this website? | it helped me sooo much i am truely gtateful that this site is around. thank you guys. |
| Your Name | Nick |
| Where are you from | Jersey |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I have pectus carinatum and so does my sister (she is a twin but the other twin does not have it. I did get referred to a paediatrician when I was younger (I am 36), but the surgical option was brushed aside, as it would be a major operation that was deemed un-necessary. |
| Does your pectus deformity affect you psychologically? | I have to be honest and say it does to a limited extent - i do feel self-concious when I am topless. I would still consider surgery to make myself look 'normal' - the Nuss procedure seems interesting. |
| Does your pectus deformity affect you physically? | Not really. I am a SCUBA diver and have good lung function - in fact I had a chest X-ray because the doctor wanted to check that my lung function was not impaired. |
| What do you think of this website? | Very good. |
| Your Name | Lothar |
| Where are you from | Germany |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | Thank for your information.
I´m looking for treatment for adult people.
Can you give me advise? |
| Does your pectus deformity affect you psychologically? | Yes, iot does. Long years I woudln´t admitt, that it`s affecting me everey day. I`d like to take my wife in my arms without feeling a kind of inner hesitation and shame. |
| Does your pectus deformity affect you physically? | No, not really |
| What do you think of this website? | Its a good and understandable information. |
| Your Name | Nathan |
| Where are you from | Cambridge, MA |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | I have had mild-to-mid-range P.E. (not half as bad as the example photo) since I was an infant, and I'm 25 now and luckily it didn't get worse as I grew up. My dad has it, too, but in a more mild fashion. When I was younger there was a chance to have surgery (prob the Ravitich method), but the insurance company balked at the pricetag and now as an adult, I'm pretty much all set with the way I am, though I'd like my posture to be a little better. The only thing I worry about is passing it on, but that's out of my hands.
One thing does bother me, though, and maybe someone has an answer: does having P.E. keep you out of the US military? I'm not really interested in that currently, but it would be nice to have the option. |
| Does your pectus deformity affect you psychologically? | Growing up, it wasn't always easy, especially with swimming lessons, and I hated it for a long time.
However, times change, and as an adult, I hardly even think about it, other than its effects on my posture, which I hope will improve with exercise and fitness training. The only reason I feel uncomfortable shirtless is that I need to tone up a lot. The pectus isn't a problem. |
| Does your pectus deformity affect you physically? | Posture, that's about it - I don't have scoliosis, but I have to make a constant conscious effort to push my shoulders back, which hopefully doesn't make me look strange or inflexible. Stamina and endurance haven't really a problem, and I can certainly hold my breath OK. |
| What do you think of this website? | Good. I never thought to look this up before. Very interesting. |
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