Current guestbook entries

Your Name	David Spruill
Where are you from	San Diego, CA
Your E-Mail	[email protected]
Your Web Site URL	http://
Comments	I got PE when I was a teen. It is so great to have a web-site to communicate with other families and persons with PE. I used to think I was the only person ever to have this defect. PE affects every aspect of one life from childhood on.
Does your pectus deformity affect you psychologically?	No as much now, but when I was a teen, I never went shirtless, and was very shy around people. Even today, I have never had a relationship and have never married or had children. So at age 43, I just accept being single. I had surgery (Duke Medical Center...Durham, NC) in 1976 and have a 90% correction, so now my PE is not very noticable.
Does your pectus deformity affect you physically?	When I was younger, I tired more quickly, and did not have the same physical strength the other guys had. I ovoided sports so I would not have to be shirtless. I learned to cross my arms lots to distract from my chest, and to wear lose fitting shirts.
What do you think of this website?	It is wonderful to have a site to be able to communicate with others affected by PE.

Your Name	Max Jackson
Where are you from	Longfield, Dartford, Kent
Your E-Mail	[email protected]
Your Web Site URL	http://
Comments	I am 14 years old and i ahve just been to hospital to confirm that i will have the operation done on my chest. I have pectus excavatum and it is only since i started secondry school that i became very concious of it. I find it hard for anyone to take it seriously as most just laugh, but some of my close friends understand. I can never take my T-shirt off in public, only ever around good freinds and family. I am glad i am having the operation done as it will allow me to live life to full the same as all my friends.
Does your pectus deformity affect you psychologically?	Yes, i will not remove my T-shirt it is too embarrassing. Although sometimes i don't care and just have fun with everyone else, why shouldn't I?
Does your pectus deformity affect you physically?	I don't really know but listening to the other people talking i think it does. I can't run a long way, i always get stitch just under my ribcage. I also had athsma when i was very young.
What do you think of this website?	The website is great and i will advise it to anyone i meet with the same condition.

Your Name	Vegeta
Where are you from	Norway
Your E-Mail	[email protected]
Your Web Site URL	http://
Comments	Great site provides a lot of information about the pectus deformities.And the surgical treatment you can get done to fix it.Hope this can be fixed in Norway to.
Does your pectus deformity affect you psychologically?	Yes, i am always aware of my deformity since I think of it every day. I got complexes because of this deformity,wich is pectus.carinatum. I am not sure if my deformity is p.e or p.c but my doctor says I have a p.c but I am getting to talk to a specialist in Norway about it who hopefully can give more information on how I can"fix" this stupid chest of mine.Because my dream has just been to get a normal chest. And the "perfect body" , I to want to wear a thight t-shirt, but at the present time this is not an option since the deformity is so visible.But maybe later when I have had surgery I finally can do it. I only hope I can do this operation in Norway but I will not know that until I have spoken to the doctor. I am 19 years old by the way
Does your pectus deformity affect you physically?	I train a lot of weights trying to improve my physic , and it helps when i see that I gain more muscle around the abdominal muscles and pecs. But still the deformity is present, so I am tired of hiding my chest i am going to have it corrected no matter what the cost!!!
What do you think of this website?	great site!!!!

Your Name	Lauren
Where are you from	Georgia, US
Your E-Mail	[email protected]
Your Web Site URL	http://
Comments	Hi! My name is Lauren and i was diagnosed with pectus carinatum several months ago. This is in response to an entry from quite a while ago, a woman named Kim whose daughter suffers from P.C.: I was skimming the guestbook here when I came across your entry asking if anyone else had this deformity and was older than your daughter. I am now 16 years old and I have noticed my deformity since I was around 13. It has grown steadily worse as I went through puberty and is assymetrical, protuding farther on the left side. I also refer to it as "the Bone," however my friends are very supportive and help me keep my sense of humor about it even though it makes me VERY selfconcious and causes me great distress. I have minor scoliosis along with it but neither deformity has affected me in my physical abilities so far. I am a serious volleyball player and have put off any surgery for fear that it would hinder my career in the sport. I also high-jump in track. I feel like a kindred spirit to your daughter, because I too forced my mother to go out with me in search of bras that would help downplay the appearance of the Bone through my clothes. So far I have been able to conceal it fairly well. As for bathing suits I found that the bikinis which feature a triangle top with a wide band of fabric beneath the triangles works best to cover it although it is still visible if you know its there. The best thing you can do for your daughter now is to let her now that you will stand by her and be supportive of whatever choices she feels are neccessary to make her feel okay about her physical deformity. Through my support network I have grown much more confident and don't even mind showing curious friends in the locker room what the Bone is like. I even have a boyfriend now and he doesn't care what I look like and lets me know that he will stand by my if I choose to undergo the surgery. We have gone to several doctors about possible surgery and the recovery time looks like around 3 months before I could resume volleyball. Because I have grown to accept the Bone even though I do loathe it, :) I have decided to finish highschool an volleyball before entertaining the possibility of surgery. I went to the prom this year and when I looked in the mirror and saw a beautiful smiling girl looking back at me I knew that I was blessed in so many ways and that I should not put myself down anymore. After all its not mine or you daughter's fault that we have this deformity. It may be unfortuante but it is fixaable and life does go on! I hope all goes wel with you all and that whatever decisions you make concerning the deformity are best for you and her as an individual. Good Luck! Well wishes from someone who knows EXACTLY how you're feeling, Lauren
Does your pectus deformity affect you psychologically?	The past year has been the hardest for me because before I came to terms with my deformity I was in constant fear that people would see it and make fun of me. I walked through school with my books held against my chest or my arms crossed; i slouched in my seats and stood with my shoulders hunched forward hoping to lessen the Bone's prominence. But through the support of my friends and my wonderful, loving parents, I have to decided to accept the Bone as a part of me-- don't get me wrong I still wish every day that there was an easier option than surgery to be rid of it and I often question why it was that I had to get this horrible physical deformity. But then I have to realize that what I have could be worse and is not life-threatening. I know first-hand how hard it is to deal with this, but I also know that I am stronger for it and that without the unending support of my friends and my amazing parents, I would not be the confident woman I am today. I still have days when I hate myself and my looks and when I just want to be alone and have a good cry. Looking around at the other girls who seem so perfect just kills me but I know that no good comes of comparisons: each person has something that she hates about herself too, just know that!
Does your pectus deformity affect you physically?	not that I have noticed
What do you think of this website?	it seems mostly devoted to pectus excavatum. In fact I have had a hard time locating any really good sites concerning pectus carinatum and if anyone has any info I would LOVE to have it!

Your Name	Christopher J. Hall
Where are you from	Barton upon Humber, North Lincolnshire
Your E-Mail	[email protected]
Your Web Site URL	http://www.passarellafansite.co.uk
Comments	I have a pectus excavatum and at sixteen years old this has made me very self-concious about my image. I visited the doctors about this for the first time roughly a year ago but the doctor told me it's nothing to worry about which made me feel absolutely no better. He mentioned the 'big operation' forms but said they were much to risky and painful. I've recently (thanks to your website) heard that silicon implants are another option but i am unsure whether this leave a lot of scarring or not. If any one else has any info please, please, please, pass this on to me by e-mailing me with the address provided. Thank you, and keep up the good work with this website, Christopher J. Hall
Does your pectus deformity affect you psychologically?	Yes, definately. I have absolutely no confidence in my self and i am always afraid of not wearing a shirt or wearing only one shirt so that it is clear that i have this disformality. For years i've wondered 'What can be done about this? I just want to look more normal."
Does your pectus deformity affect you physically?	Again, i believe so. I've had problems with breathing for a while now (but not asthma), pains in my chest, and even cronic dizzy spells. I'm notm sure if these are all related to the pectus excavatum but these seem to all have increased in recent years.
What do you think of this website?	Absolutely fantastic. I wish there were more like it. I rarely, well, never, visit medical sites but because this one so closely deals with something i have become weary of then i will definately become a regular here.

Your Name	Stuart
Where are you from	Woking
Your E-Mail	[email protected]
Your Web Site URL	http://
Comments	I have pectus carinatum..the first time I noticed this was getting teased after taking my shirt off at boy scouts (around age 11 > I'm now 29). I persuading my mum to take me to the doctor (in tears) - we went and the doctor just said it would get better over time (which it didn't), not to be so concerned blah blah blah. It has affected my self-esteem and self-image throughout my life. I never let people see my chest, have spent many years going to the gym (which I now love to do!) - and this has helped slightly. Have only recently found out that my 'abnormality' has a name - I didn't realise other people suffered with it!!! I though I was alone...Nearing 30, I am resigned to living with it - although have considered surgery. Did see my doctor a few years back (after conjuring up the strength to show my chest!) and was fobbed of with usual 'no surgeon will operate - to risky', 'only cosmetic problem' (i.e learn to live with). I am physically very healthy, and although it has only really affected me psychologically it is has still had a powerful affect on my life. Remember, you are not alone! Feel free to email me if you need any support.
Does your pectus deformity affect you psychologically?	Early teens to mid twenties - almost obsessive concern with hiding it from people (no swimming, no taking of my top in front of people, no tight tops). Has prevented intimacy with other people. I'm only now learning to accept myself....which is great!!! but it's taken over 15 years. When I look back, its amazing the impact that this 'cosmetic condition' has had on my life.
Does your pectus deformity affect you physically?	Not really. Have mild asthma (severe in my childhood) - but very strong and fit.
What do you think of this website?	Excellent. It's good to know there are other people out there with the same problem

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