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Current guestbook entries
| Your Name | Bill Jones |
| Where are you from | Liverpool, UK |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | As an only child, I was (I think) born with PE, but was never allowed to acknowledge or accept it. As such, I grew up very shy, very alone (as I knew no-one else with the condition) and the subject in my family was completely taboo. At the age of 55, this is indeed my very first day of finding out my condition's name (through my current counsellor request to research it). I never expected to find the wealth of information on the website, and I am so grateful to know that I am not alone. |
| Does your pectus deformity affect you psychologically? | It always has. The reason for counselling over the past 30 years is because I could not put my finger on why I was so withdrawn as a person. From my formative/teenage years and beyond, the idea of sunbathing, swimming or any activity that involved removing my shirt, was horrent. It is something that I have carried as a "dark secret" all my life and because of the shell I spun around myself to hide my secret, I have never formed any relationship with anyone, for fear of being "found out". Ever since I became conscious of the condition, I had always been under the impression that it had been caused by being a blue-blood baby and the fact that I had to breathe through my mouth - hence sucking in more air and caving in my chest. |
| Does your pectus deformity affect you physically? | Physically, I'm fine - to a point. I was always a sickly child, missing much school. I put it down to living in bad housing conditions at the time, but now I am not so sure.
To date, I now have diabetes Type I (insulin required) and take a range of other medicines to cover hypertension allergies and stress. |
| What do you think of this website? | Seeing your website for the first time today has given me new hope for the future. It has, for the first time in decades, given me a new dimension to my life. Yesterday, I didn't even know the name of the condition. Today, I feel a new confidence in myself. I wish your website well and hope it serves the same inspiration to others.
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| Your Name | Jill |
| Where are you from | Kentucky, USA |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | Thank you for this site! It's very clear and informative. |
| Does your pectus deformity affect you psychologically? | Somewhat, I don't like wearing tight clothes or swimsuits because my ribs stick out. |
| Does your pectus deformity affect you physically? | Not really, but I have a low stamina. |
| What do you think of this website? | It's nice to know I'm not the only one! :) |
| Your Name | Andy |
| Where are you from | England |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | Hi
I just looked into my 'problem' for the first time a found a link to your site.It's very clear and informative,thanks. |
| Does your pectus deformity affect you psychologically? | Yes,I'm 36 now and always had the 'mick' taken out of me at school as a child (I have the sunken one)I have always hated it and been embarrsed by it.I am very single and currently have non stop suicidal thoughts,I have been depressed for a very long time and have lost all confidence in myself.I'm not saying it's all down to this but a lot of it probably is.It has never been made an 'issue' of and was never even mentioned to me by my parents.I guess it's the same as woman saying the first thing a man does is look at her chest,well for me it's the same I can see them looking at my 'hole' in the chest when ever someone first meets me,I HATE IT. |
| Does your pectus deformity affect you physically? | I think if I liked sports it would(I don't), I do excercise but have trouble with 'stamina' and getting out of breath, difficulty in breathing.
The 'funny' thing is you are always told your heart is in the 'middle' yet I always argued this saying rubbish mine is to my left and I was always laughed at! Your website says I was right all along ;-) |
| What do you think of this website? | Very good,but could give some 'rough' prices for private surgery to give us an idea.
Not that I have any money ! |
| Your Name | Lauren |
| Where are you from | gosford |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | i have a PE and i am now 20.Just recently i found out a lot about it.
i have never been told anything about this condition. I am so glad i know now and to think i am not alone. |
| Does your pectus deformity affect you psychologically? | Yes it does i've never been able to wear certain clothes or go to the beach in a bikini that is a big dream for me one day when my chest is fixed to go to the beach and be just like others.! |
| Does your pectus deformity affect you physically? | Yes it does i find that a get a tight feeling across my chest when i have been exercising and it is sometimes harder to take deep breaths. |
| What do you think of this website? | GREAT it has been so helpfull for me i now know so much about my PE. |
| Your Name | Kate |
| Where are you from | McHenry, Illinois |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | It is nice to know that there is a website that not only talks about the facts of the disease, but the emotional side as well. |
| Does your pectus deformity affect you psychologically? | I had it taken care of about 8 years ago, but I still at times get self-conscience about the scar |
| Does your pectus deformity affect you physically? | The scar gets uncomfortable sometimes, but it is healing at an excellent rate. |
| What do you think of this website? | I thought this website was very helpful. It has all the information I need. It answered all of my questions about the disease, now that I am old enough to understand it. |
| Your Name | Steven |
| Where are you from | Sunderland, UK |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I am 26 and suffer from Pectus Excavatum. It was noticed when I was a child but typically my parents were told not to worry and it would get better with time. It did not. I myself was not aware of it until late teens when I guess most people start to become conscious of their bodies. I took myself to see my GP who again told me it was just my shape and not to worry.
Having recently began to research this myself so much more makes sense. I am very self conscious of my chest and try and cover it as much as possible. But never realised that my diminished breath capacity, poor stamina and racing pulse during exercise were all linked to this. I am now really too old for the corrective surgery so can only offer advice. Any parents discovering this in their child should shout, scream do whatever it takes to get someone to take notice and fix it. It doesn't go away, its always be with you and will hinder your childs confidence for many years. |
| Does your pectus deformity affect you psychologically? | Very much, its easy to say just get over it but be it in the gym, at the beach or pool it never goes away. The staring eyes can reduce a very strong willed, sucessful and confident indiviual such as myself to shy retiring person. |
| Does your pectus deformity affect you physically? | Diminshed breath capacity (Confimed medically), my pulse rises to 190 within 2 minutes of strenuous exercise, I have a poor recovery rate and low stamina. |
| What do you think of this website? | As someone who was never told anything could be done for me until it was too late, everything helps |
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