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Current guestbook entries
| Your Name | kerry cropper |
| Where are you from | uk |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | i found this website interesting as i suffer from pectus excavitum but am disapointed to see all the pics are of men/boys.dont you realise girls suffer from it too.we need a girls perspective! |
| Does your pectus deformity affect you psychologically? | yes its bothered me for as long as i can remember.i suffer from severe depression have done from the age of 15,ive tried to comit sucide,had councelling been on anti depressants because of it. |
| Does your pectus deformity affect you physically? | i hate buying bras as none fit at all proberly.i cant wear tight fitting or low cut tops as im afraid someone will notice.ive alwasy kept my hair long to cover my boobs as ones alot bigger than the other.i have to wear padded bras as my mismatched boobs along with my chest look horrible.i cant wear bikinis and hate goin swimming.im terrified or being with men or talkin to them incase they want to take things further and they see it. |
| What do you think of this website? | its very informative and helpful |
| Your Name | Taylor Short |
| Where are you from | Assaria, Kansas, USA |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I have this disorder just wanted some information |
| Does your pectus deformity affect you psychologically? | No |
| Does your pectus deformity affect you physically? | yes, I cannot pick up heavy things and hit it often on my desk at school. |
| What do you think of this website? | i really like it i found a lot of useful things |
| Your Name | bruce givetz |
| Where are you from | california |
| Your E-Mail | [email protected] |
| Your Web Site URL | http://groups.msn.com |
| Comments | I try to be active in groups dealing with pe/pc. |
| Does your pectus deformity affect you psychologically? | It did when I was a child and also somewhat into my teen years. I became a little less sensitive as an adult but find it interesting when I hear what other adults (and children) say when they see my pe. Many people have obviously never seen pe and therefore are curios about it. |
| Does your pectus deformity affect you physically? | I have a trace leak of both the aortic and mitral valve. I do not feel any real affects though. I remain physically active at age 58. |
| What do you think of this website? | Very informative and will help to take the mystery out of pe/pc for many individuals. |
| Your Name | Ian |
| Where are you from | UK |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | |
| Does your pectus deformity affect you psychologically? | At times, not quite as willin to get the shirt of as otherwise would expect to but who needs to in britain anyway?! :) |
| Does your pectus deformity affect you physically? | Makes me more motivated to build muscle theirfor staying healthy, with the hope of making it less visable. So good in the long term then |
| What do you think of this website? | very helpfull, have looked at others and this is probably the best. Key points i take away from it and think are helpfull are that opperations are only required and advisable for extreme cases and that wait gain makes it less visable (maybe more on this would be helfull e.g. certain exsersises that will help the most) |
| Your Name | Kate |
| Where are you from | Illinois,US |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | I am 15 years old and had pectus carinatum. I had surgery to remove it when I was in 3rd grade. I am now doing a research paper on it and came across this website. I got alot of great information that I can use and found out alot of things I didn't know. |
| Does your pectus deformity affect you psychologically? | It used to before I had surgery. I would get selfconscience and think about how deformed I looked. But I know that if I had never had the surgery, I would be alot more selfconscience because I am in high school and people notice that kind of stuff. |
| Does your pectus deformity affect you physically? | Again, before the surgery it used to alittle bit. I could still move and function normal, but it was uncomfortable. |
| What do you think of this website? | It is very good. It is full of great information and answered all of my questions. It is nice to know that while pectus carinatum is not real common, I am not alone. |
| Your Name | Bill Jones |
| Where are you from | Liverpool, UK |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | As an only child, I was (I think) born with PE, but was never allowed to acknowledge or accept it. As such, I grew up very shy, very alone (as I knew no-one else with the condition) and the subject in my family was completely taboo. At the age of 55, this is indeed my very first day of finding out my condition's name (through my current counsellor request to research it). I never expected to find the wealth of information on the website, and I am so grateful to know that I am not alone. |
| Does your pectus deformity affect you psychologically? | It always has. The reason for counselling over the past 30 years is because I could not put my finger on why I was so withdrawn as a person. From my formative/teenage years and beyond, the idea of sunbathing, swimming or any activity that involved removing my shirt, was horrent. It is something that I have carried as a "dark secret" all my life and because of the shell I spun around myself to hide my secret, I have never formed any relationship with anyone, for fear of being "found out". Ever since I became conscious of the condition, I had always been under the impression that it had been caused by being a blue-blood baby and the fact that I had to breathe through my mouth - hence sucking in more air and caving in my chest. |
| Does your pectus deformity affect you physically? | Physically, I'm fine - to a point. I was always a sickly child, missing much school. I put it down to living in bad housing conditions at the time, but now I am not so sure.
To date, I now have diabetes Type I (insulin required) and take a range of other medicines to cover hypertension allergies and stress. |
| What do you think of this website? | Seeing your website for the first time today has given me new hope for the future. It has, for the first time in decades, given me a new dimension to my life. Yesterday, I didn't even know the name of the condition. Today, I feel a new confidence in myself. I wish your website well and hope it serves the same inspiration to others.
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