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Current guestbook entries
| Your Name | Elmer |
| Where are you from | New York |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | well i had this problem since i was 12 and now im about to turn 16. All the doctors told me 2 wait 6 months to see if it changes but it looks the same to me i think is about time 2 have a surgery but now my mom dont want to she thinks that is goin 2 go away but im goin to the doctor soon to see wat he is goin to say |
| Does your pectus deformity affect you psychologically? | nop i dont think so |
| Does your pectus deformity affect you physically? | i play 3 sports baseball,basketball, and football im a good athelete n i get tired a little bit |
| What do you think of this website? | it is good |
| Your Name | Chris |
| Where are you from | Cleveland Ohio |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I have pectus carinatum, I have had the surgery, Its been over 8 months, anyone who need information about pectus carinatum, the surgery, other way to treat, any kinds of question about dealing with the insurance companies, or any questions about pre, and post operation, id be glad to help, contact me by email |
| Does your pectus deformity affect you psychologically? | Yes |
| Does your pectus deformity affect you physically? | I thought it affected my stamina a little, not so sure, deffinetly i got pains from it, felt like my heart was being pushed on, also just the pure annoyance of it |
| What do you think of this website? | Its nice to see a website dedicated to this, as most doctors are underinformed about pectus excavatum, and pectus carinatum, it seems to be a more growing open issue now, although it is very common. |
| Your Name | Dave |
| Where are you from | A Brit living in Gremany |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | Hi, I am 38 and I have wide aera PE.
For the last four months I have had daily treatments with Ekart Klobe Vacuum Bell and my chest has been raised from 5.9 to 4cm.
The effect currently lasts a few hours but as time goes by the longer it is remaining raised.
If you dont want the operations, you may wish to try the Vacuum bell.
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| Does your pectus deformity affect you psychologically? | |
| Does your pectus deformity affect you physically? | |
| What do you think of this website? | |
| Your Name | Mrs J Green (mother) |
| Where are you from | Australia, living in the UK |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | My son is 4 1/2 and born in the UK ansd he has a PE. His father has a flat chest with flared ribs at the base and his brother who is 9 has no defect. All the doctors that have seen my son have said that its ok, he will grow out of it. As a nurse myself, I am concerned about heart and lung problems, and as a mum I am worried about the effect of his chest being different! We live in the UK at the moment but we will return to Australia in a few years. While here in the UK and while he is young the PE doesnt pose much of a problem, but when we go back to Australia where no shirt is the norm, I dont want him to grow up with a complex. |
| Does your pectus deformity affect you psychologically? | As my son is so young he isnt really aware that he is different. I do worry that as he reaches puberty (or before) that he will realise and get a hangup about his chest. He has a very gentle nature and I dont know if he will have the strength to brush it off and not let it bother him. |
| Does your pectus deformity affect you physically? | I didnt really think about it, but he does tire easily and is quite happy to sit our vigorous activity. Not to say he is not fit and lively. But he does have the pot belly and rounded shoulders. |
| What do you think of this website? | Its informative, but needs updating. A lot of the links are no longer available. |
| Your Name | anonimous |
| Where are you from | |
| Your E-Mail | |
| Your Web Site URL | http:// |
| Comments | im 22 year old male. ive had pectus carinatum as long as i can remember. although it wasnt visable at birth. |
| Does your pectus deformity affect you psychologically? | yes i tend to keep people at a distance, for fear of their reactions. although my case isnt as bad as some ive seen i was teased as a child and developed a quick temper which just as quickly ended the teasing.in my high school years the few guys who found out treated me like a side show attraction telling everyone, "you have to see this", the few girls that found out were disgusted and treated me like i was contageous which was one of my worst fears growing up. i find it hard to start anykind of relationship and it has caused a really introverted personality which im fighting but it feels like an uphill battle. |
| Does your pectus deformity affect you physically? | no im healthy and strong. i started working out trying to hide my problem but i turned out to be more of a distraction, merly buying time before people notice my deformity |
| What do you think of this website? | great im not the type to go to a doctor unless im in unbearable pain so until recently i didnt know what was wrong with my chest |
| Your Name | russ hardy |
| Where are you from | from Norfolk uk |
| Your E-Mail | [email protected] |
| Your Web Site URL | http:// |
| Comments | I found this site so helpful... from which I found a specialist .. however from now just having other serious health probs i am unforunately unable to go ahead with any surgery and just have to live with my deformity.. which is hard and as been all my life since the age of 7 years |
| Does your pectus deformity affect you psychologically? | yes.. It has done since the age of 7 years... i keep checking my clothes to make sure people cant see it and always aking my partner before i go out if they can see my chest... It has ruined my life |
| Does your pectus deformity affect you physically? | Ye s... complications with my asthma and bronchiectasis which was diagnosed 2 years ago means my chest has no expansion and my oxygen levels fall |
| What do you think of this website? | excellent... which I had known more before when I was younger and done something about this chest deformity then |
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